I've gone back and forth about what should be included in this blog. I know that I want to talk about family and crafts. It's fun to share the fun things that we do and things I've made. But, what about the not so fun stuff? I don't think that will ever be the focus, but when I brought the flags I made to the hospital and tied them on the crib in the room that Sheldon, Fiona and I would be staying in for 48 hours, I thought I should share it.
Fiona was born with a hemangioma on her right shoulder. At first it was small but within a couple months, it grew fairly large. It's about 2.5 inches across. About 3 months ago, the surface started ulcerating. The ulceration is pretty large and has become a big problem.
First, we just applied neosporin and a band-aid. When it continued to worsen, we started using a special dressing; duoderm. When the ulceration continued getting bigger and deeper, we had 2 laser treatments done. Nothing has helped, so now we have resorted to using propranolol.
We just got back from our 48 hour hospital stay where she was given the medication and monitored. The next step is just continuing the meds at home and watching the ulceration and hemangioma. Others have had a lot of luck with this treatment.
I just absolutely hate that my baby daughter may be on the propranolol for months, but having gone through all other options with no improvement, there wasn't really an alternative. She can't just have an open wound on her back... We couldn't care less about the cosmetic aspect.
This has been really difficult, but everything is ok. She hasn't shown any side effects and the medication seems to be working.
Anyway, I hope to capture on the blog how much all of this means to me. The family traditions and making things that hopefully show my family and friends how much I love them. I hope that these flags will be used in years to come and remind all of us that no matter what we did, we did it as a family. No matter where we were, we were there together. And, even though it's kind of silly to attribute all of that to these little flags, it helps.
I am so, so grateful that I have this family to celebrate with, but also to be with when things aren't going perfectly. I am just SO GRATEFUL.
Thanks for reading, and I hope this wasn't oversharing.